Purpose of this blog

My name is Cor and this is my story dealing with mucosal melanoma (MM) in my nose which was diagnosed on 10 Jan 2017. I am married and have 2 kids. I write and update this blog to reach out to all my loved ones far away with updates and my state of mind and also to share information with other patients.

Monday, January 16, 2017

Treatment questions for 1st Oncologist visit

Treatment Question:
- What are the options of treatment?
- Any new unproven treatments?
- Any side effects? How to prevent/ease the effects?
- How do we know the treatment is effective?
- How we measure progress?

Chemotherapy questions:
- Which nutritional deficiencies can result from my treatment?
- Does Cold Cap work to reduce hairloss?
- Does fasting it minimise damage to healthy cells? 3d before and 1d after? (T regulatory cells.)
- Which anti nausea drugs can I get?
- What is neuropathy and how to prevent it?

Radiotherapy questions:
- Is my treatment aim to cure, prevent recurrence or to relieve symptoms (palliative)?
- (Two types of issues from the book)
- Which medication can i get to minimise damage to healthy cells?
    - Salivary glands: Amifostine
    - Nausea: ?

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