Purpose of this blog

My name is Cor and this is my story dealing with mucosal melanoma (MM) in my nose which was diagnosed on 10 Jan 2017. I am married and have 2 kids. I write and update this blog to reach out to all my loved ones far away with updates and my state of mind and also to share information with other patients.

Thursday, June 20, 2019

Pain, pain....

I now have 2 months of severe pain in upper arm muscle and shoulder joints. The nights are the worst. I don’t know how to sleep. Turning and twisting unexpectedly sends jolts of pain. 
It’s written as being a side effect on Opdivo websites, confirmed by my oncologist.

As do other patients undergoing the same treatment as me, I am taking hot baths, visiting my chiropractor/physio to correct my posture, stretching, yoga, take walks, go cycling, go for massages. I do anything that keeps me moving. 

I stopped pain killers and pads as it’s just not helping enough. I stay active❤️ and hope it doesn’t spread and above all that it’s not permanent. 🙏 sigh....