I was reading about the changing treatment required for fellow patients in my Mucosal Melanoma fb group. She had Opdivo like me for a year and suddenly tumors in liver and lung started to grow. Now she is going through chemo therapy and radiation. It makes me aware not to underestimate my situation. Be prepared and rest well.
Other patients talk about loss of memory due to immunotherapy treatment. Difficulties adapting to this as 50-60-70 year olds sounds very much the same as what my father goes through, and he is 93. I wrote this as a comment:
“I am getting foggy (a detached mind) every 2-3 weeks. It passes after I go home and rest. I just had my 34th bi-weekly Opdivo infusion. I can’t do multi talking as I used to. One task at a time, and follow-up/through is missing and easily slipping. It’s frustrating. I now accepted it and my staff support me a lot. At home my wife has to repeat things, and I forget appointments. She reminds me patiently but has another kid in the house now. I got mad at a times, with myself mostly, and now just say ‘yes mam’ with a smile and we all live with it now. I am 58 and prepping my mind with games like sudoku and language lessons.”
Again, just being prepared and accepting the side effects.
On the other hand, today I went shopping with my wife, looking for Christmas presents and realizing both that we have everything we could ever wish for. Shopping like this has been a long time ago, actually 2 years, before I was diagnosed. Just relaxed and without any thought about being sick. We are blessed with this progress!
