Radio oncologist meeting Result

We met with a very kind and factual radio oncologist, who explained the meaning of the colors in the PET/CT scan. Whenever he was in doubt, he referred to the Nov'16 CT scan on my head. He asked if I had double vision, or numbness which I didn't have.
He pointed out that the tumor had not entered the orbit of the eye. This was a great relief. The tumor was contained in the sinuses.

He compared the left and right side, and found that certain yellow areas of high metabolism activity were not tumor, but post-op inflammation. Also when I explained that my nose had been broken during the operation to make space for breathing, he could eradicate more yellow areas of activity.

He explained the options of treatment (not in sequence of preference):

1. Surgery with 'mop-up' radiation
2. Radiation using protons/heavy carbon irons in Japan, Austria & Germany
3. X-ray treatment in Spore. (Make mask, CT-scan + MRI scan.) 6-7 weeks of treatment. 

X-ray side effects:
    1. Temporary irritation of eye.
    2. Temporary tanning of skin.
    3. Temporary nose block.
    4. Permanent loss of saliva glands on the left side.😳
    5. Painful ulcerations on mouth pallet after 3-4 wks. (Use cream and pain spray).😳
    6. Temporary hair loss in the neck.
    7. Temporary blocked ear because it may receive some radiation.

Proton beam treatment locations:

• Japan, Chiba: Best technology. Not approved by FDA. He recommended this treatment as it was proven effective for melanoma. (Same treatment at a different hospital)
• Austria, Heidelberg: has more experience with melanoma.

Advice and next action:
His final advice was to start treatment before it goes into the orbit of the eye.
He would discuss the results with my chemo oncologist.