Purpose of this blog

My name is Cor and this is my story dealing with mucosal melanoma (MM) in my nose which was diagnosed on 10 Jan 2017. I am married and have 2 kids. I write and update this blog to reach out to all my loved ones far away with updates and my state of mind and also to share information with other patients.

Wednesday, July 04, 2018

J-class Rainbow, 1934 defender of the America's cup

The days at home recovering from treatments get longer and longer. So, as I mentioned in my previous blog, I decided to start building a model of a J-class yacht. I had been looking for a completed model in shops for many years, but always found them too ugly. I needed one with enough realism and detail to enjoy the beauty of her lines and feel the sheer size of her class.

Enjoy a short video of her history and how she has been brought back to life.
Here are some images I found on-line which provide an example of how she was sailed and how the rigging looked like. I use this to make the model more realistic, and not just follow the instructions. 

Action on deck





Leaning in

Close hauled
It will take a year. to build this model.
The owner Vandebilt at the helm
The owner Vandebilt in port















Look at how tiny the blocks are at a scale of 1/80. This took me an hour! You can see it hanging next to Mr Vandebilt in the picture of him at the helm of his yacht.
Its really tough to get it right so I use the contraption shown below.

Not happy yet with the first mainsheet block I made
The contraption to help my eyes to focus

Tuesday, July 03, 2018

Combination effect

My yearly health checkup of the company was due 26th June, and I asked my doc if the barium test would have any effect on the CT-scan planned on the 28th. He said it would be fine.
Barium test is there to check my intestines and stomach on polyps. You drink barium fluid as contrast fluid and by turning in the scanner it provides an image of the walls of stomach and intestines. It’s basically a horrible test as it takes time for the body to get rid of the barium.

So on the 28th my blood test was fine, and I was all prepped on the CT-scanner. However, the nurse said there was too much barium remaining, and I had to report to my doctor. Infusion needle out, and another wait for an update of progress. The doctor apologized and rescheduled the scan for 11the July. The afternoon was infusion time (no22) for 2 hours, which is always made easy by the lovely nurses. They keep on apologizing when they remove the needle and pull out hairs along with the adhesive tape. It makes me feel grateful every time.

The evening was different, the night was not easy and the next day I had zero energy. The intestines were completely out of order with barium and Opdivo inflammation. I just looked out the window, not knowing what to do. I ordered a model of the Rainbow yacht online as I felt like doing things without being able to move around much. The next day it was weekend, and it was a bit better but still no energy.

I guess that’s what it’s like. Just hanging in there, not letting constant fatigue make me feel depressed.  Summer has arrived, and it’s 36°. It saps whatever energy is left in me. Let’s see what model building brings. The tie a thin thread around a 3mm block for an hour and get it wrapped with an even thinner thread is a new challenge. The fun of it is that handling the tiny tools while looking through a magnifying glass makes you forget everything, including barium. The yachting knots I learned when I was young come in very handy. I will share some pictures.