Nivolumab (Opdivo) is the immunothrapy of choice for metastized melanoma (in the bones). When reading through the few cases on-line, there is not much enlightening information. Most reports are: no cure, but pain and bone deterioration is treatable. It all depends on how early the detection was.
I was diagnosed with metastasis in the spine almost immediately after radiation therapy was completed, but in a matter of months it has spread already to spine, ribs, hips, upper arms, upper legs.
So what to think? How to give this battle a stage in my mind? What to expect? What are the first recovery symptoms to look out for that Nivolumab catches on? What are the symptoms that it doesn't?
There are no definite answers as every patient reacts differently to Nivolumab. All articles and blogs on melanoma sites are quite old. Many have bursts of activity followed by the dreaded 1 or 2 years of silence which can mean anything. The patient support site of Opdivo are mostly lists of possible side effects and tables to keep track of them duing my own therapy.
Have trust in medical technology, trust in God, pray and live a healthy lifestyle. Drink a lot, regular exercise and yoga, steam a lot to keep the area of surgery in nose and sinuses moist and rest. Also I have the advantage that my boss took over my most critical tasks. There is work to do, but delays are acceptable so no stress, and it's ok to rest enough.
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