Purpose of this blog

My name is Cor and this is my story dealing with mucosal melanoma (MM) in my nose which was diagnosed on 10 Jan 2017. I am married and have 2 kids. I write and update this blog to reach out to all my loved ones far away with updates and my state of mind and also to share information with other patients.

Thursday, January 14, 2021

The book is published! (+ less happy news)

Today my oncologist showed me the CT-scan and pointed out a grey spot, approximately the size of the tip of my finger. He also showed me the same spot on the scan of 3.5 years ago for comparison. It’s smaller now but he explained that it’s not clear if it’s still shrinking or that it’s growing again.

Following the visit to my oncologist, the MRI was done and the results will be out next week Monday (18 Jan). In case it’s growing again, there are two options:

  1. Start with radiation treatment. Discuss with radiologist if proton beaming is still possible.
  2. Restart with immunotherapy before or after radiation treatment.
Pretty straightforward isn’t it? No panic, no gloomy moods, just restart treatment again after a year of hope that it was gone. Melanoma is known to stay dormant in the body and become active again. It all starts to sink in now.

The good news is that my publisher informed me that my book is ready! It can be ordered now by clicking on the image on the right bottom of this blog. I am told it can be ordered in any local bookstore using the ISBN number. This will save you the shipping fees. Let me know what you think of the book. Also you can let me know if you prefer the ebook version. 

Small things like my book make me happy. This new development is obviously a setback but I learned the past years to stay positive and keep hope. This phase will pass, with treatments and side effects etc. One day at a time...

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