Purpose of this blog

My name is Cor and this is my story dealing with mucosal melanoma (MM) in my nose which was diagnosed on 10 Jan 2017. I am married and have 2 kids. I write and update this blog to reach out to all my loved ones far away with updates and my state of mind and also to share information with other patients.

Sunday, December 15, 2019

Updated history

6 Jan'17 : surgery in Singapore to remove a polyp, Melanoma is diagnosed
16 Feb'17 : maxilliary sinus and nose surgery in Singapore to remove Melanoma from nose and left sinuses
1-19 Apr'17 : proton beam radiation (5 sessions) in Kashiwa Cancer Center Tokyo
1 May'17 : starting work again (part-time)
25 May'17 : MRI scan finds possible metastasis in the spine
1 July’17 : Move permanently to Tokyo for treatment.
7 Aug'17 : MRI/PET scan, cancer in sinus and nose is gone! Melanoma has metastasized in the spine and other bones
9 Aug'17 : Melanoma specialist in Tsukiji Cancer Center proposes treatment for bone metastasis: one-shot strontium drip, followed by check-up after 3 months and then decide on Opdivo. Admission tests: blood, X-ray, CT-scan, ECG test.
14 Aug'17 : Strontium IV is not suitable for me as I have no pain. Also because the short/long term side effects are bad for the bone marrow.
21 Aug'17 : Start 3 months immunotherapy. 6 infusions of Nivolumab (Opdivo)
30 Oct'17 : CT scan, priliminary diagnosis of treatment effect, continue with Opdivo as there are many tumors in brain artery, liver, left kidney, spleen, spine and other bones.
1 Nov'17 : Decided to start a new life. Erasing the past in my mind and focus on living life as it should be lived: once. Enjoy the small things.
13 Nov'17 : CT-scan shows all tumours have reduced in size: brain, liver, left kidney, spleen, spine, etc. Start 2nd set of 6 infusions.
25 Jan'18 : CT scan shows shrinking tumours, ongoing repair in bones and a new swollen lymph node. Start 3rd set of 6 infusions.
1 Feb'18 : Start working 6 hours/day, 4 days/wk.
5 Apr'18 : The detailed report of the CT-scan is not in yet but the oncologist said it looks good.
10 Apr'18 : My radiologist is very positive that primary site is clean. Metastasis is also shrinking continuously, so he is convinced I will make it. 
19 Apr’18 : Detailed CT-scan report, infusion no18. Continue infusions for another 1.5 year (probably).
11 Jul’18 : CT-scan looks great. My radiologist is so happy to see us and says a miracle has happened.
18 Oct'18 : Blood is normal. CT-scan shows continuous shrinking of tumors, infusion no30. Keep on going!
Jan'19 : Blood is normal. CT-scan shows continuous shrinking of tumors.
Apr’19 : Blood is normal. CT-scan showing same continued progress. Some spots in the lung will need confirmed in the next scan.
May’19 : PET/CT scan shows that all activity in the body has cleared except for a spot in the maxillary sinus.
Jul'19 : CT scan shows all is clear. The detailed report is also all clear, only some remaining traces in the bones.
Sep'19 : Start Opdivo with 4 weeks interval. Next scans in Oct'19 and Jan'20 to check the impact.
Oct’19 : CT scan shows all is again clear. The detailed report talks about remaining traces of tumors but not if they are active or not.
Nov’19 : Blood test is normal, infusion #52. Start taking iron supplements to recover from chronic anemia.
Dec’19 : Doctor decides that infusion #53 is the last one. Next CT scan in planned in Jan’20. Anemia is recovering.

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